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Under the Health and Social Care Act 2012, NHS England has the power to direct the HSCIC (Health and Social Care Information Centre) to collect and share patient confidential data (PCD) from all providers of NHS care, including general practices, without seeking patient consent. This data is not anonymized. One of the first initiatives, using these new powers is the launch of the Care.data service. This service has been commissioned by NHS England and will be delivered by the HSCIC. The HSCIC is England’s central authoritative source of health and social care information.
Care.data will make increased use of information from medical records with the intention of improving healthcare locally and nationally for example by ensuring that timely and accurate data are made available to NHS commissioners and providers so that they can better design integrated services for patients. It will also help in finding more effective ways of preventing, treating and managing illnesses. The British Medical Association supports the use of patient data for secondary purposes, including commissioning, and recognises the importance of greater transparency and more intelligent use of data to improve the quality of care delivered to patients. NHS England has made a commitment that personal confidential data will not be shared unless there is a legal basis or an overriding public interest in disclosure.
If you do not wish your data to be collected by Care Data please ask reception for an ‘opt out’ form. For more details about Care data visit: www.nhs.uk/caredata
We are involved in research studies which require access to anonymous information from patients' notes. All directly identifiable details (name, address, post code, NHS number, full date of birth) are removed from your notes before they are collected for research. Individual patients' records are added into a much larger anonymous database from many patients across the UK which is used by researchers outside this practice. This data may be anonymously linked to other data, such as hospital data.
If you would like to opt out of this data collection scheme, please let your doctor know and your records will not be collected for use in the anonymous research database. This will not affect your care in any way.
A Summary Care Record is an electronic patient record a summary of patient data held on a central database cover England (the national spine). The purpose of the data base is to make patient data readily available anywhere that the patient seeks treatment from another Healthcare provider for example the Out of Hours service, A and E departments or if they are staying away from home and need to see a GP. Demographic details, allergies and adverse reactions and medications are initially uploaded to the spine. It is the information that is useful in the event of an emergency and to provide patients with direct care and treatment. It can also contain additional medical information that is agreed between patient and GP.
If you are happy to have a Summary Care Record then you do not have to do anything. If you do not wish to have a Summary Care Record you will need to complete an opt out form. Please obtain a copy from reception or visit: systems.hscic.gov.uk/scr or Download the form below.